Our family recently spent a week in a cabin on a lake up in New Hampshire. It was wonderfully relaxing with no set schedule. We spent the days in canoes & kayaks or on inflatable rafts in the water. A few tried some swimming but the water was COLD!
We rode our bikes, found some great ice cream, and took a day trip to Gunstock Mountain to take in their high ropes course and zip lines. We had too many s'mores for too many nights in a row.
The hard part was figuring out how the brace fit into all of this activity.
Because things changed day to day, hour to hour, Dancer Girl was in & out of it much more than usual which got tiring for her emotionally.
She also found it very difficult to sleep on the beds in the cabin while wearing the brace even though we brought some of her extra pillows, and her bedroom was hot.
While we tried to keep it on as much as possible I found it harder to enforce on vacation and we almost certainly never reached the 18 hour per day goal.
It was our first week of summer vacation at the time and so it was hard to figure out a new routine. Now I think we have settled into one, more or less, but that will change as camps and vacations come up over the next few weeks.
For this vacation we drove to our destination but there is a trip involving a flight coming up at the end of the summer. Travel by air with the brace will be a new adventure...
Our family lives in the New England area and our daughter wore a Boston Brace for her scoliosis. She started in 2014, wore it 18 hrs/day for a year, then 8-10 hrs for 6 mo. She is now brace-free. We refer to her as Dancer Girl. Her younger sister was also diagnosed with scoliosis (2016). She is referred to as Cello Girl. So far, she does not need a brace. We are not doctors or specialists, and nothing on this page should be taken as medical advice. We are simply sharing our journey.
Your blog is AMAZING! I love all of the posts; they are so helpful! I am a dancer too and I also have a scoliosis blog. Please check it out: lifewiththecurve.weebly.com
ReplyDeleteGlad you like the blog - just checked out yours and it is a terrific source for girls with scoliosis. Particularly liked the spine twist post for Dancer Girl so thank-you for that one. We will add you to our list of dancing with scoliosis sites and fashion tips sites.
ReplyDelete